Saturday, September 17, 2022Tonight's picture was taken in September of 2008. That day Mattie's technology teacher, Mary, came to the hospital to visit him. Mary was a regular! She practically came every week or every other week to chat, work, and in a way entertain Mattie. While Mary was with Mattie, I would go into the hallway and pull myself together. I very much appreciated these breaks and outside stimulation for Mattie. Because I was Mattie's parent, playmate, nurse, and caregiver. Many roles to serve. Mary brought Mattie his own laptop from school. He was very excited and that year with each hospital admission we did, the computer came along.
Quote of the day: As someone who has lived the nightmare of losing a child, I know that the enormous hole left behind remains forever. ~ Arthur Honegger
A Tiger Swallowtail at our butterfly bush! September is childhood cancer awareness month, as well as the month Mattie died, so it seems symbolic that we are surrounded by butterflies!A Palamedes Swallowtail! We get all kinds of flutterbys!
Can you see the katydid?
A typical day. When they are sleeping, I am working me head off on other things. However, their sleeping comes it bits and pieces, which is why I can never get much accomplished. I also hate where my office is located in the house. It is located right in the middle of grand central station. The highlight of our day. Peter's cousins in Missouri, sent us this wonderful Edible Arrangement. Thank you Cheryl and Steve!I am very grateful for the support, care, and kindness we still receive from Team Mattie. My caregiving is very different now, yet those closest to me get what I am up against. Fruit and chocolate brings happiness to my weekend.
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