Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

July 29, 2017

Saturday, July 29, 2017

Saturday, July 29, 2017

Tonight's picture was taken on August 10, 2009. Five days after we learned that Mattie's cancer had spread all over, making his condition terminal. These are photos I did not highlight during Mattie's treatment, but we had many moments that looked like this. Mattie was in the hospital and simply not feeling well and was depressed. You will notice his albino boa constrictor stuffed animal, named Sunshine, on his hospital bed. Mattie was given Sunshine by his good pal, Jocelyn. Jocelyn had osteosarcoma, and died five years after Mattie. Mattie loved Sunshine, and you can still find Sunshine in Mattie's bedroom today.  


Quote of the day: Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, ‘I will try again tomorrow.’ ~ Mary Anne Radmacher


Last weekend when we were in Charlottesville, we visited my friend's art gallery (Anne Gould Gallery). I met Annie years ago when we were both going for advocacy training on Capitol Hill for childhood cancer. Annie lost her youngest daughter to cancer. A matter of months ago, Annie opened up a gallery. Both she and her husband are artists, yet that was NOT their career before their daughter died. 

We hung the "Deceased Oak" today. We purchased this Oak from Annie's gallery. It is a watercolor, the only one of its kind, created by her Husband Alex. Alex comes from a long line of artists in his family and all of his works are stunning. What is also unique about Alex is he hand crafts all of his own frames. So naturally this painting of an oak, has a frame made out of oak. 

To me this is the perfect wall for this original piece. It is hung over the Italian marquetry box that houses Mattie's ashes. Mattie LOVED oak trees, as he was an avid acorn collector and enjoyed giving them out as gifts. In fact, after Mattie died, his school asked what type of tree we wanted to plant in Mattie's memory.... we said an oak. Unfortunately both of Mattie's memorial oak trees died, as Alexandria has some sort of oak blithe. Nonetheless, this painting depicts an oak that no longer exists in Charlottesville, though it provided beauty for years. It seemed like the appropriate painting that captures the essence of Mattie.  

Tonight we are meeting friends for dinner. We were all going to meet at the Obelisk. A restaurant I have heard of for years, because of the quality of their food. The restaurant is tiny and intimate. They serve a five course dinner and request that their guests come to relax and NOT eat in a hurry. I was looking forward to this, however, the restaurant called me this morning to let me know about a fire on their street, which has cut electricity to the street. So clearly I wasn't meant to try Obelisk tonight! 

We had to come up with Plan B! Fortunately DC has a wonderful magazine called the Washingtonian. Whenever I want to get restaurant inspiration, I turn to its top restaurant list in our area. They recommended Riggsby, which you see here. So the verdict is out, but given that it is grey, cloudy and rainy, getting out of our home is welcomed!

1 comment:

Margy Jost said...

Vicki, i stared a long time at this picture of Mattie. In fact, I looked at it this morning before we went to his tree. This picture is heartbreaking and if I feel this, what must you & Peter feel. I have never understood people who say to a parent of a seriously ill child, they know how they feel! They don't because if they feel badly, one can only imagine the degree worse a parent feels. I believe people in general can't begin to imagine the pain parents experience when their child suffers and they can't fix it.

I like your quote about courage. I wrote it down! Quotes are my thing. Some touch me deeply for the truth they hold.
Mattie's friend Jocelyn sounds remarkable. Wonder how many friends, she said good bye to before she herself died. I think of all the relationships kids made with one another, when I worked. They were special, age did not matter, experience did. They all shared a cancer diagnosis. They all faced an uncertain future. Their extended family were a group of medical people in various job capacities. We may have been each a part of care giving but they were definitely the teachers.