Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

April 13, 2022

Wednesday, April 13, 2022

Wednesday, April 13, 2022

Tonight's picture was taken in April of 2009. Mattie was being discharged from the hospital and as you can see he accumulated MANY birthday balloons over the course of that particular admission. Honestly when I look at this photo I have absolutely NO IDEA how Mattie could smile. Given all that he was enduring and how he was feeling, he truly was a remarkable fellow. One thing was for certain and that was Mattie trusted Peter and me, he believed we were making the best decisions for him, and together we were a strong three-some. 




Quote of the day: In deep sadness there is no place for sentimentality. William S. Burroughs


Today was my dad's first time at the adult day memory care program. I honestly did not know how it was going to go. On the car trip over to the center (it is only a ten minute drive), my dad asked me repeatedly where we were going. Why he was going, what he was going to do there, and the list went on. By the time I got to the center, I was wondering whether we should just turn around and go home. But I got out of the car, and got him to the front door. There were many drop offs happening at one time, so in my opinion it was chaotic. We waited by the front door for a minute until someone came to unlock it and help my dad inside. I wasn't allowed inside, so I had to tell them who my dad was, hand them over a change of his clothes and depends undergarments, as well as a check for the month of April. Hoping of course that all these items went to the correct place or person. I am very type A, so given the chaos I saw, I left with very little confidence. 

As soon as I got home, I wrote to one of the staff members at the center and told them that I dropped off my dad and left his items and check with someone at the front door. My dad spent four hours at the center and Peter and my mom picked him up at 2pm, because I was at my annual physical exam. 

When I got back home, I asked my dad about his day! He remembered NOTHING. I mean NOT ONE THING!!! He had no idea even if he had lunch there or had a snack. I know he must have given the center's schedule. But it is a scary notion that he can't remember one activity, one person, or even whether he ate. In all reality he could be doing God knows what there, or not do anything at all. Without seeing it for myself, I am truly working in the dark. Which doesn't fit my personality. 

I also noticed that my dad came back home today without his red fleece, the jacket I dropped him off with. Again this to me is sloppy and shows a poor level of organization. When you are caring for a large number of people, organization and a system are crucial otherwise this happens. I am hoping to track down his fleece and learn their system. Because I can't have his jackets and things disappearing on a regular basis. Mind you I asked whether items needed to be labeled before I dropped him off. I was assured this wasn't necessary. 

Meanwhile, before going to my physical, I started cooking a big leg of lamb. It is my Easter treat, as I am not cooking at home on Easter Sunday. Instead we are going out. I had hoped to plan a dinner and have close friends over, but I just don't have it in me. A rather sad commentary for our first Easter in our new home. In fact, there is very little joy in having a new home, given all that I am balancing on any given day. When I got my blood test results back today, I was expecting total chaos in the data, given how I am feeling. Fortunately I remain stable overall, but I am glad my doctor is having me take a CT of the heart and to get a coronary calcium score, because given my parent's history, I want to be very proactive. 

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