A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



March 14, 2023

Tuesday, March 14, 2023

Tuesday, March 14, 2023 -- Mattie died 702 weeks ago today. 

Tonight's picture was taken in March of 2009. Mattie was admitted that day to the hospital for his next round of treatment. How do I know? I know because when in the hospital, Mattie insisted on ONLY wearing pajamas. When he was home or arrived at the hospital from home, he would dress in regular clothes. Interesting, no? I think that said volumes. In any case, that day I snapped a photo of the IV behind Mattie. Notice that the liquid going into Mattie's body was RED! It was Doxorubicin, one of the chemotherapies in Mattie's treatment regimen. Doesn't the color make you want to take notice and warn you to be cautious around it?


Quote of the day: The greatest remedy for anger is delay. ~ Seneca


When I went to wake my dad up this morning, my mom explained to me that my dad was up every 30 minutes last night. He got up, would go to the bathroom, and then sit on the toilet for about 15 minutes. Then he would repeat this cycle every 30 minutes. My mom is still recovering, and is on her third round of antibiotics. In order to heal, she needs to sleep and rest. Unfortunately that did not happen for her last night, so she was in a state today. Naturally I have to figure out why my dad is doing this night behavior. This is unusual for him and of course my mind wanders to him having a urinary tract infection or kidney stone. The sad part is my dad can't report out how he is feeling and he doesn't even remember being up all night! Which makes understanding or having insight about what he is experiencing very difficult. 

In addition, today was one of the days my dad was home the whole day. He did not have his memory care program, which meant that it was hard for me to get anything done. I was scheduled to take my parents for a dental cleaning today, but given my mom's health, I canceled that plan too. 

Later in the morning, I received an email that I had to take on-line ethical trainings for a research project Mattie Miracle is involved in. Honestly I just can't handle one more thing on my plate. I literally went through four training modules today and got a certificate of completion. I thought I was therefore done, until I went back to my course folder. 

Once in the folder, I found several more courses I have to complete! Literally, I LOST IT. I became angry, especially since I am juggling cooking, cleaning, and my dad's bathroom trips all at the same time. So instead, I decided to follow the sentiment that is reflected in tonight's quote...... I literally closed the on-line training program and will open it up another day. I can only absorb so much at once and that decision, helped to dissipate my frustration.

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