Tonight's picture was taken on January 22, 2009. Mattie was the photographer and he captured the excitement of all of us in his room. Going counter clockwise was me, Jenny (Mattie's art therapist), Jessie (Mattie's art therapist), Linda (Mattie's child life specialist) and Anna (Mattie's physical therapist). Each of these women were incredible and I can't imagine managing through childhood cancer without them. They helped make the long and arduous days in the hospital bearable. In typical fashion there were more things on Mattie's bed than one could imagine. But one thing was for sure, the one thing typically not in Mattie's bed was Mattie!
Quote of the day: Today's coronavirus update from Johns Hopkins.
- Number of people diagnosed with the virus: 62,727,044
- Number of people who died from the virus: 843,624
Sometimes I wonder..... what haven't I done today?! Today was one of those days. It started with calling to get my mom an ultrasound and cardiologist appointment. The cardiology office was a riot. The first available appointment was the end of March! I told them.... NO I don't think so. So now we are seeing the doctor on February 8th! I honestly do not know what some patients do without an advocate.
After the calls, I made breakfast, cleaned out the cat's litterbox, got my dad up, showered and dressed. I changed my parent's bed and did three loads of laundry, and the list goes on. I did occupational therapy and cognitive exercises with my dad. Then I vacuumed the second floor of the house and dusted. I wish I could say it ended there, but it did not. Literally from the moment I wake up until I go to sleep, I am moving. Constantly.
With all this activity, I find I have no energy or interest in doing anything else. That sometimes includes responding to emails, phone messages, and forget about Foundation work. Each day I say to myself..... I will carve time to do X or Y or Z today. But then another day goes by and poof, it is over. I did complete all 70 acknowledgments for the Foundation's annual drive fundraiser, which felt like a feat. But I was determined. All I can say is I don't need more pressure. So I take it one day at a time and try not to get down on my inability to complete work like I once did.
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