A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



April 12, 2017

Wednesday, April 12, 2017

Wednesday, April 12, 2017

 Tonight's picture was taken in May of 2009. It is a great photo because it captures the antics of Mattie. Peter blew up many hospital gloves and Mattie wanted them all around him on his bed. Peter didn't do this just to waste gloves, he did it because Mattie was down and in a mood. But all these turkey looking gloves brought a smile to all of our faces, including Mattie's nurses. 
Quote of the day: Step out today not seeking to be in the spotlight but seeking for a spot to light - be a blessing to someone. ~ Bernard Kelvin Clive

I went to MedStar Georgetown University Hospital and made a LARGE toiletry item donation today. After my drop off of items, I then went to push our snack/item cart around the pediatric units. There is one mom and her son who I have seen EVERY month that I go for at least the last four months. I so relate to her and I told her, though I don't know her I think of her often. So many families were thrilled to see the snack cart today, and some clearly stock piled on things. One mom even said, the hospital needs this cart to go around hourly. Boy do I get her sentiments!!! But there were aspects to my visit today that were deeply disappointment and upsetting as I continue to see an institution that I once was so fond of change before my eyes. I will leave it at that. 

I feel this has been the week of massive items coming in and out of our home. I did a big Goodwill run earlier in the week, so I had that massive pile. Then I had the toiletry pile which amounted to 12 garbage bags full of items, and now this!!! These boxes were just delivered to us today..... over 400 Walk t-shirts. At times I feel like I operate a warehouse in addition to a Foundation. With planning the Walk comes chaos in my life that won't dissipate until June. 
Posted by The Brown Family (DC) at 7:23 PM

1 comment:

Margy Jost said...

Vicki,

Mattie's picture is sweet. Nothing is ever wasted if the end result brings joy to a child who is sick.. In our play area, we had play doh. It was the homemade kind because that easier to handle. I made it weekly or every few days depending on how often it was used. Each child got a clump, the first day, Then they had this piece for the # of days, they were in the office. We used needle less syringes. One could say that was a waste. However,, it helped the younger children exercise their hands. It was very useful to use the small motor skills. However, we used it because there was A LOT of pretending to give a shot!!! Smiles were priceless. Nothing is wasted ever, if you get the smile! Those gloves on Mattie's bed - Wonderful💖🌻

April 13, 2017 at 7:37 AM

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