A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



August 18, 2020

Tuesday, August 18, 2020

Tuesday, August 18, 2020 -- Mattie died 568 weeks ago today. 

Tonight's picture was taken in August of 2008. I remember this moment like it were yesterday. Mattie was visited by two teachers from his school, Dave and Larry. Both were coaches of the football team and Larry (on the right) was also one of Mattie's kindergarten teachers. They came over bearing gifts. A signed team ball and a signed photo of the entire team. This was when we first met Coach Dave. He and Larry supported Mattie throughout his cancer journey. They also were instrumental in the early days of the establishment of Mattie Miracle. As they volunteered countless hours at each of the Foundation's Walks in Mattie's memory.

Quote of the day: Today's coronavirus update from Johns Hopkins.

  • number of people diagnosed with the virus: 5,480,487
  • number of people who died from the virus: 171,679

In addition to physical and occupational therapy, we try to do cognitive exercises every day with my dad. Everything from word finds, memory games, to now Numbricks! We were introduced to Numbricks today during my dad's occupational therapy session. The Numbrix puzzle is all about making an unbreakable path using a starting and finishing number. Numbers have to connect in a horizontal or vertical consecutive path. The highest and smallest numbers are given and printed in circles. 

I would say that my dad needs more cognitive challenges as dementia has greatly impacted his ability to function. In fact, in many ways it is the dementia that makes his care far more complex than his physical limitations. Dementia is not just about losing one's memory. It impacts one's personality and temperament. My dad has really no understanding of time. He constantly checks his watch and therefore, when he requests things, he wants them done instantaneously. He will keep asking for the same thing, until his request is met. Not so much of a problem, until you understand that he fires multiple requests at you, at the same time. In reality, he can be very emotionally exhausting. He frustrates easily and can lash out. 

As we were talking today at lunch, he doesn't recall AT ALL being hospitalized twice. Once in May and once in June. I showed him a photo of him and me in the ER together for ten hours during the second week of June (for an impacted colon). He has no recollection of any of this. 

Meanwhile, Peter was dealing with our in home flood!
The flood came from the air conditioning unit in the ceiling. 
My understanding is that the wood floor is getting re-tiled tomorrow! 
Peter took Sunny to Roosevelt Island and leave it to our boy! He found a turtle!












Mattie loved turtles! Therefore, when I see turtles, I think of him!



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