A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



February 5, 2025

Wednesday, February 5, 2025

Wednesday, February 5, 2025

Tonight's picture was taken in February of 2009. Mattie was 6 years old and I snapped a photo of him right outside his hospital room. It was not unusual for us to decorate Mattie's door and it was a GIVEN that there would be decorations inside Mattie's hospital room (on the walls and the ceiling). Literally we traveled with bins that we would cart into the hospital with each admission. The bins were filled with Mattie art work, plates, utensils, laundry detergent, Mattie's favorite toys and books, and whatever else we needed for our long stays! Truly it looked like we were moving into and out of a home with each admission and discharge! We also traveled with many pajama sets too because Mattie's clothing of choice while in the hospital were pajamas. I did not fight his choice, because truly he had very little control over anything else. 


Quote of the day: You'll never find a rainbow if you're looking down. ~ Charlie Chaplin


As I sit tonight to compose this blog, I realize I am tired! I also acknowledge that I have had another long day of chores, running around, Foundation work, cooking, cleaning, and caregiving. It leaves me feeling down, not because of any one thing, but because of everything put together. Typically by the time I get to the computer in the evening, I have some notion of what I plan on writing about or reflecting upon. Tonight, I have NEITHER. 

Perhaps tomorrow will be better? I am not sure, as my days feel a lot like the 1993 movie, Groundhog's Day. The only difference, is I don't wake up to an alarm clock each day singing me Sonny and Cher's song, I got you babe! There are certain guarantees to my day, and they entail, chores, isolation, caregiving, managing crises, and at times when I am not absolutely inundated then fear creeps in about the future.

Any case, the one ray of sunshine in my day is I think I have diagnosed my mom's toe/foot problem! For about three days now, I have soaked her foot at night for 40 minutes in Epsom salts and then I wrap her toe. She feels like it is improving and frankly I am not going to stop this soaking and wrapping routine until I can effectively touch her toe without her screaming. I have consulted three doctors on this issue, and at the end of the day, I had to solve the problem for myself! Typical!!! 

All I can say is down days are abundant for all of us. But as tonight's quote points out, we must always hold out hope to see a figurative rainbow. 

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