A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



November 6, 2025

Thursday, November 6, 2025

Thursday, November 6, 2025

Tonight's picture was taken in November of 2004. Mattie was two years old. My parents sent Mattie this little table and chairs and he loved it. We did all sorts of projects on this table. However, it wasn't unusual for Mattie to set up his Thomas trains here! When I look back at this photo, it reminds me of my innocence. As my world was free of childhood cancer, we were an intact family, and divorce was not in my lexicon. 


Quote of the day: If you ever feel overwhelmed, take on another project. ~ Roy Halston Frowick


I came across this quote today, and it made me laugh! To me, it describes me to a T. I am overwhelmed MOST days and just when I think I can't possibly take on another project..... it happens. Today took the cake. 

I got my dad downstairs with only ten minutes to spare this morning before his physical therapist arrived. I was totally strung out after showering him and then dealing with his irritable bowel issues. It was my hope that while my dad's therapist was working with him, I could focus on a set of question a college student sent me, as she is doing a research paper on the psychosocial consequences of a childhood cancer diagnosis. As I said..... that was my hope, my goal! Forget it!

I happened to check my email account for the Foundation and found a message telling me that my account was going to be shut down today, unless I clicked a link. I may not be computer savvy, but I am smart enough to know.... NEVER click a link. Especially if you do not know who is sending the message. What made me particularly anxious is I have received this message at least three times in two weeks. So in my head today..... I thought, maybe this was legitimate. 

I tried contacting Microsoft, which was supposedly where the message originated. Good luck! If you have a question for Microsoft and you want to talk to a live person, forget it! I was beyond frustrated. Then it dawned on me, that our Foundation's email account is run through a company that hosts our domain. So I reached out to them. I actually have their number in my address book, because I always have questions about our account. 

Any case, I was on the phone an hour with Tommy. What a God send. He reviewed the issues with my email and saw that indeed fraudulent messages were getting through and as of today, we devised a plan to secure everything that belongs to the Foundation. I learned today that many hacks are actually working behind the scenes to set up a scam website that may look like a legitimate non-profit. So for example, let's say someone sets up a website that looks like mine, then my supporters could potentially donate to this look alike site thinking they are donating to my non-profit, and of course the money would never get to the cause! I was having NONE OF THAT foolishness today! As I always say, Mattie Miracle is my second baby, in memory of my first baby, therefore, I will protect it at all costs. Which I did today with Tommy's help! 

But I am sick of all these surprises, daily crises, and having to navigate it all alone. It is hard to describe what my day looks like, but in between caregiving, I was processing both personal and Foundation mail, financial issues, a credit card issue for my mom, outdoor light timers that needed to be reprogrammed, and then it dawned on me..... the new furnace never went through a county inspection. Any new piece of equipment installed in a house, is permitted, and the work needs to be inspected and approved. I flipped out because this hasn't happened yet and I reached out to the installer of the furnace. I got that resolved with an inspector hopefully is coming at the end of the month! But honestly the list goes on. My joke is I never stop moving from the moment my feet hit the floor in the morning. 

Last night, I went outside to pick fresh basil in my backyard. When I was out there, the whole backyard seemed to be glowing. I looked up and there it was.... a huge Mattie Moon! He never forgets his mom, and literally when I am outside by myself, it isn't unusual for me to talk to the moon! Don't worry the moon isn't talking back to me, or at least not yet!
  

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