Mattie Miracle Childhood Cancer Psychosocial Symposium -- March 20, 2012 (8am-4pm)

Mattie Miracle Childhood Cancer Psychosocial Symposium -- March 20, 2012 (8am-4pm)
Join us at the Capitol Hill Visitor's Center for a Congressional briefing, research sessions conducted by leading psycho-oncologists, and learn about the psychosocial impact of childhood cancer from six wonderful families touched by this disease. Help us make this first event like this on the Hill a success. LPCs, Social Workers, and Psychologists can earn 8 continuing education contact hours for attending. Click on the picture of the US Capitol Building to REGISTER!

Mattie Miracle Day at Whole Foods -- AN $8540 SUCCESS!!!

Mattie Miracle Day at Whole Foods -- AN $8540 SUCCESS!!!
THANK YOU for visiting us at Whole Foods in Alexandria, VA on Wednesday, January 25, 2012. Whole Foods 5% day generated $6935, and from donations and selling 209 tickets for the super bowl raffle basket we generated $1605!

Bows for Hope

Bows for Hope
Mattie Miracle's Face of Hope, Lauren Chelenza (a 13 year old Osteosarcoma survivor) is the Founder of a non-profit called Bows for Hope. Lauren is an outstanding spokesperson for childhood cancer and a role model for us all. She designs duct tape hair bows by hand and 100% of her proceeds go to Mattie Miracle. Help support this amazing young woman and tell your friends and family members about her. She is making a difference one bow at a time! Click on the picture of the bows to visit Lauren's website!

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful.
As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.

As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter

The Mattie Miracle Cancer Foundation celebrates its second anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) non-profit and tax exempt charitable organization dedicated to finding better treatments and a cure to Osteosarcoma and Childhood Cancers. We help build the awareness of osteosarcoma and childhood cancers, and educate the public and medical professionals about the realities of childhood cancers. We advocate for the psychosocial needs of the children and their families who are fighting this terrible disease. Please visit the website at: http://www.mattiemiracle.com/ and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

Number of Visitors Since October 12th, 2008

January 16, 2012

Monday, January 16, 2012

Monday, January 16, 2012

Tonight's picture was taken in January of 2009. We were center stage at the Minskoff Theatre in New York City. Jenny, Mattie's outstanding art therapist, helped us obtain 6 special tickets to the Lion King and when the show was over, we got a back stage tour by the actress who played Nala (Simba's girlfriend in the Lion King). This actress was a lovely person and she tried very hard to engage Mattie! She had us pose for a picture, and she asked us to roar like a lion! Karen captured us in motion and as you can see Mattie thought the whole thing was funny!


Quote of the day: You give but little when you give of your possessions. It is when you give of yourself that you truly give. ~ Kahlil Gibran

Last night, I could tell my symptoms were not getting any better and resting wasn't helping. So at 9:30pm, I called my doctor's office and spoke to the on-call physician. For me that is always tricky because my physician understands my case, but that isn't true for all her colleagues. Luckily however, my physician's fellow was on call, and we had met each other before during my office visits. Needless to say, she prescribed more antibiotics and at 10pm, Peter was driving to CVS. My pain was intense enough for me to mobilize forces at 9:30pm on a Sunday, and I knew without new medication, there was no way I could have made it through the night with the pain I was in.

Thankfully the antibiotics are starting to work and I was able to keep my schedule today. I had a fundraising meeting scheduled today between the salon I go to and a cultural group in DC. Specifically the group is called, Italians in DC. This group is interested in promoting Mattie Miracle's cause and they were initially attracted to us because I am an Italian American. We have already scheduled the event for March 31, starting at 8pm. So as the plans unfold, I will certainly keep my readers informed.

Today's meeting seems to illustrate Gibran's quote. After all, these individuals are not giving me their possessions. In fact, they are giving me MUCH more than that! They are sharing their time, expertise, skills, and giving me access to both of their communities! To me this is an enormous gift because they are all busy professionals, but they are people who feel compelled to help others and to make a personal difference in this world. This was a very touching philosophy to hear and a philosophy that in my perspective makes the world more meaningful and a better place. It would be nice if we all had a village supporting us. But life doesn't always work out that way. Instead, I do believe villages (or support networks) are created one person at a time!

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