Mattie Miracle Childhood Cancer Psychosocial Symposium -- March 20, 2012 (8am-4pm)

Mattie Miracle Childhood Cancer Psychosocial Symposium -- March 20, 2012 (8am-4pm)
Join us at the Capitol Hill Visitor's Center for a Congressional briefing, research sessions conducted by leading psycho-oncologists, and learn about the psychosocial impact of childhood cancer from six wonderful families touched by this disease. Help us make this first event like this on the Hill a success. LPCs, Social Workers, and Psychologists can earn 8 continuing education contact hours for attending. Click on the picture of the US Capitol Building to REGISTER!

Mattie Miracle Day at Whole Foods -- AN $8540 SUCCESS!!!

Mattie Miracle Day at Whole Foods -- AN $8540 SUCCESS!!!
THANK YOU for visiting us at Whole Foods in Alexandria, VA on Wednesday, January 25, 2012. Whole Foods 5% day generated $6935, and from donations and selling 209 tickets for the super bowl raffle basket we generated $1605!

Bows for Hope

Bows for Hope
Mattie Miracle's Face of Hope, Lauren Chelenza (a 13 year old Osteosarcoma survivor) is the Founder of a non-profit called Bows for Hope. Lauren is an outstanding spokesperson for childhood cancer and a role model for us all. She designs duct tape hair bows by hand and 100% of her proceeds go to Mattie Miracle. Help support this amazing young woman and tell your friends and family members about her. She is making a difference one bow at a time! Click on the picture of the bows to visit Lauren's website!

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful.
As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.

As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter

The Mattie Miracle Cancer Foundation celebrates its second anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) non-profit and tax exempt charitable organization dedicated to finding better treatments and a cure to Osteosarcoma and Childhood Cancers. We help build the awareness of osteosarcoma and childhood cancers, and educate the public and medical professionals about the realities of childhood cancers. We advocate for the psychosocial needs of the children and their families who are fighting this terrible disease. Please visit the website at: http://www.mattiemiracle.com/ and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

Number of Visitors Since October 12th, 2008

January 14, 2012

Saturday, January 14, 2012

Saturday, January 14, 2012

Tonight's picture was taken in January of 2009. Mattie had a clinic visit at the hospital and while there Jenny and Jessie (his art therapists) saved him a box. Mattie LOVED constructing all sorts of objects from boxes. You would be amazed the boxes that the hospital staff saved for Mattie, and then even more amazed by how he transformed them! As you can see Mattie took an ordinary box and made his version of a bicycle helmet out of it! He was wearing it at home and I snapped a picture of him. But if you knew Mattie, then you can tell from his facial expression that he wasn't really happy or feeling well. He was looking at me with a very glassy smile, and yet despite how he was feeling on even the worst days, he always tried to connect with me in some way.

Quote of the day: There is something in humility that strangely exalts the heart. ~ St. Augustine

This morning I attended a local gymnastics meet. Ann's youngest daughter, Abigail, was competing and Ann invited me to go with her. Typically Abigail's meets are out of town and therefore I can't attend them. In fact the last one I remember going to with Abigail was in January of 2010. A lot has changed in two years both developmentally for Abbie and emotionally for me.

I never studied gymnastics nor do I watch it on TV. So I do not understand how the sport is scored and judged, but that is okay. Actually it may be even better that I don't have this knowledge, because I was able to sit back today and watch things for there sheer grace and beauty. What I found intriguing was that my eye focused upon those gymnasts who presented themselves more like a dancer. Some looked like dancers and moved with the same grace and beauty. Clearly there are two very different philosophies to gymnastics, you either train and reward skill and power, or you really train the kids on the grace and poise of the sport. It would be lovely to see these things go together and I imagine they do as the children mature. Nonetheless, grace and style capture my mind and heart. It is a treat to watch a child defy gravity with beauty and to see her facial expression to match.

It was evident to me that the girls performing really had humility and for the most part supported their team mates, which was lovely to see. It is through this humility that I think the hearts of those in the audience are captured. Nonetheless, I would have to say that the children managed the stress of the day better than most of the adults in the room. The level of tension and anxiety in the room were high and I came home and I asked Peter, what on earth is all of this for? This is when my cancer world collides with the real world, and things or priorities do not make sense.

I spent the rest of the day at home in bed. I haven't been feeling well all week, and the pain has culminated this weekend. So I just have to rest. I truly believe all my physical ailments are very tied to grief and stress and most likely a direct result of the 14 months of intense stress fighting Mattie's cancer. This is a stress that lies dormant within my body and seems to pop up at interesting times. Any case, I am signing off for tonight in hopes that tomorrow is a better day.

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