Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

June 21, 2016

Tuesday, June 21, 2016

Tuesday, June 21, 2016 -- Mattie died 353 weeks ago today.

Tonight's picture was taken in June of 2008. We took Mattie to a baseball game and I snapped a photo of the two boys together. Ironically Mattie was like me. He put up with sports but did not gravitate to them. So at the park, we were more fascinated by the people, the reactions and the energy around us. 



Quote of the day: The world is a book and those who do not travel read only one page. St. Augustine


Peter and I are driving to Philadelphia today to attend the Coalition Against Childhood Cancer's (CAC2) Annual Summit Meeting. CAC2 is comprised of over 80 childhood cancer organizations across the Country and for the most part, just like many childhood cancer organizations, their focus and discussions relate to the biomedical care of the disease. We have been trying to expand that message, so when comprehensive care is discussed psychosocial care has a seat at the table. Given all that we have been advocating for, CAC2 asked us if we would like to put together a psychosocial talk for the meeting. What I decided to do was transform the talk into a panel presentation with Peter, myself, and four psychosocial providers. Psychosocial care is complex and in a way hard to advocate for because it isn't performed by just one profession. Medicine is performed by doctors, nursing by nurse, etc!!! There are many professional groups who take ownership of psychosocial care, which is great, but also makes it harder to create a unified and standard form of care. Here are all of the professionals who in theory provide psychosocial care: social workers, psychologist, psychiatrists, child life specialists, art/play therapists, educational specialists, nurses and HEM/ONC doctors. 

The panel presentation is geared to accomplish two things: 1) to explain what psychosocial care is and why it is imperative for effective overall care, and 2) to highlight the necessity of Psychosocial Standards of Care, because psychosocial care varies greatly from one treatment site to the next. 

Information about the Summit Meeting:  https://cac2.org/2016-summit-annual-meeting/


Last night was the summer solstice. The first day of summer and the longest day of the year was acknowledged with a HUGH Mattie Moon. 
Mattie Moon over the Washington Monument. 



















A friend of ours sent me this photo of the big strawberry solstice moon over a lighthouse in Portsmouth, NH. She knew of my love for lighthouses and of course Mattie Moon! 


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