Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

June 22, 2016

Wednesday, June 22, 2016

Wednesday, June 22, 2016

Tonight's picture was taken in May of 2008. Literally two months before Mattie was diagnosed with cancer. We took Mattie out in a canoe on the Potomac River. This was something typically Peter did with Mattie. Peter was teaching Mattie how to fish! Of course they would catch the fish and release them, and to this day I really do not know how anything makes it in the River. It smells like a swampy mess closer to the city. However on that boating outing, I was invited along. Naturally boat or no boat I was snapping photos, and Mattie enjoyed showing me all that he was learning. But someone despite wearing a life vest, I still had a firm grip on Mattie as he was turning around for the photo. You can see the tip of my finger in this photo. It is interesting to me that it is the things that you don't plan on happening to your child, HAPPEN.  


Quote of the day: One’s destination is never a place, but a new way of seeing things.  ~ Henry Miller

Today we moderated a panel presentation at the Coalition for Childhood Cancer Research Conference. We were asked to coordinate this panel, which was important to do since this is the first time psychosocial care has had a seat at the table for this organization. Typically in the childhood cancer space, the focus is always on the biomedical care. Which of course is important, but when you think about the fact that psychosocial issues don't end when the medical treatment does, then it becomes evident that the discussion of care can't be compartmentalized. Lives (child and the family) are dramatically changed with a childhood cancer diagnosis, and it is important to break down the walls that hold onto this stigma. 

We were very pleased that the panel was compromised of diverse psychosocial professionals which is reflective of how actual care is implemented! 

From left to right: Chelsea Keeler (social worker), Rebecca Rector (child life specialist), Vicki, Anne Kazak (psychologist), Lamia Barakat (psychologist), and Peter 
On the walk to the hospital today, we walked through the University of Pennsylvania. It has a lot of history and traditional buildings which I enjoyed seeing. 
 More of UPenn
This building filled with windows and rainbow colors is the Buerger Center, where outpatient childhood cancer is provided. 

1 comment:

Margy Jost said...

Hi Vicki,
Well this is my third attempt at leaving you a message. I have succeeded in loosing the other two note, by pressing preview,, to check my spelling. This time I am hitting publish - please forgive the typing!!!!
I always feel a sense of satisfaction, when you tell me that you and Peter are going to speak about the necessity of Paychosocial Standards of Care being implemented. I believe in the importance of this moreover I know how poorly the system works now overall. Yes, there are Social Workers, Child Life, Art Therapy, etc. But some children and their families never receive any of these services and those that do, it is just not enough. I am thankful MATTIE MIRACLE has made it a mission to work to change this.
What caught my eye and attention most though were the pictures, you posted both nights. I always look at the pictures first, then read. In last nights blog, I saw your finger in this lovely picture of Mattie and thought in that moment, that all the protecting can't stop some horrific things from happening. Who could even see from this smiling picture that illness lurked. We only have now. So hard to imagine that but you and Peter live that life without Mattie. One message is always very clear in all your blogs, the message of seize the day. Your blog teaches many lessons and one is the life lesson to live in the moment. Your pictures show adventures, fun filled events and an abundance of love. CARPE DIEM!