Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.

As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter

The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

September 9, 2016

Friday, September 9, 2016

Friday, September 9, 2016

Tonight's picture was taken in September of 2008. Our neighbor had this special cowboy dog created for Mattie. The pooch even had Mattie's name and a message to him on the bottom of his boot. We got a kick out of this because the stuffed animal was almost as tall as Mattie. When I look back at this photo, I can remember how ignorant and naive we were because we thought that we were aggressively fighting Mattie's cancer and that there was some sort of hope that he could survive the disease. 

Quote of the day: Some memories are unforgettable, remaining ever vivid and heartwarming! ~ Joseph B. Wirthlin

My friend and colleague, Nancy, sent me this book in acknowledgment of Mattie's anniversary. Nancy knows how much Mattie loved cardboard boxes. The book highlights what a child can do with a little imagination and a box. Something I saw first hand. 

At an early age, Mattie gravitated to boxes. He would turn any package or delivery box we received into a car, a house, an airport, etc. 

This love for boxes continued into kindergarten. Mattie's kindergarten teacher ran a construction club after school and Mattie LOVED it. In the club kids got to use everyday items and created masterpieces using hammers, glue guns, you name it! 

These three examples below are some of Mattie's creations from his construction club days. Notice the paper towel roll, the plastic container, a cereal box, and popsicle sticks. 
You may even notice in the lower left hand corner, Patches (our calico) checking out Mattie's creations!

A Mattie tower

Boxes became crucial in the hospital. In fact Mattie's psychosocial staff would save boxes just for Mattie because they knew how eager he was to create. While creating, Mattie wasn't focused on how he was feeling or his situation. Boxes became healthy diversions! 

In this particular case Mattie designed a box to hide away in, since he didn't like the noise and commotion in the clinic at times. He was hooked up to an IV, but in there he couldn't see the pole. 

In October of 2008, Mattie worked hard at creating the ultimate Haunted House out of a VERY large box. He worked on this house for weeks. After it was built, he even designed a witch and ghosts! He played with this house often while hospitalized and pulled others into his play schemes. 

This large blue plane was designed by Mattie and Peter in the child life playroom (if you can call it that) at Memorial Sloan Kettering. The room is as large as a warehouse! 

The child life staff there did not get Mattie at all. Linda, Mattie child life specialist at Georgetown University Hospital, called to talk to her colleagues in NYC. She told them about Mattie's love for boxes and to save some for his arrival. They literally thought that was a crazy request and were also not intrigued by the final product. They did not get us and we did not get them! It was a mutual distaste. Thankfully Mattie did not have to have treatment there long term. Mattie was so in love with this plane, that he insisted it come back to the hotel with us. You should have seen that going into a NYC taxi. Mattie thought it was a riot to see a big blue plane loaded into a taxi, but he enjoyed seeing the plane in our hotel room and felt proud of his accomplished creation.

1 comment:

Margy1317 said...

I am so glad to know Mattie brought home, his big creation from SLOANE. Knowing they did not understand his creativity ability, I am glad, Mattie seized the chance to take it with him!
You weren't ignorant, you were hopeful. We can't surviv with some hope, no matter how small and that is not ignorance!