Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

June 17, 2020

Tuesday, June 16, 2020

Tuesday, June 16, 2020 -- Mattie died 559 weeks ago today.

Tonight's picture was taken in August of 2006. We took Mattie to Balboa Park in San Diego! As you can see the park was a beautiful space. Filled with museums, greenery, ponds, and a lot of things to keep kids and adults engaged. In typical Mattie fashion, he brought a toy train along for the adventure. Mattie usually did not travel empty handed, and this photo reminds me of this. 






Quote of the day: Today's coronavirus update from Johns Hopkins

  • number of people diagnosed with the virus: 2,137,731
  • number of people who died from the virus: 116,963

Today was an incredibly difficult day! If you would have told me yesterday that I'd be spending ten hours in an ER today, I wouldn't believe it. My dad started to complain of constipation last night. Issues with his bowels are nothing new for us, as he has struggled with irritable bowel syndrome for as far back as I can remember. By this morning, he was doubled over in pain and moaning! In fact, I heard him moan most of the day, that the sound is ingrained in my head. Hearing someone in constant pain, makes you want to jump out of your skin. 

I had Peter go to the pharmacy to pick up laxative suppositories. I used them with Mattie often when he was ill, and therefore knew how to administer them. I also know they are usually effective. However, I had no luck getting the suppositories to stay within his body. He literally pushed a suppository out four times. So I knew we had a problem. 

Peter and I took my dad to the ER. I arrived inside with my dad at 1:30pm. They told me I wasn't allowed inside, but that did not stop me. My dad needed the support and I wasn't going to let him navigate a hospital system while in pain. Thank goodness I am assertive because otherwise he would have fallen through the cracks.

I took on everyone today..... the ER manager (who runs a poor operation), two charge nurses, and the list goes on! I know the hospital we took my dad to, because when I was a teen, I did hundreds of volunteer hours there, and back then it was a very nurturing and patient focused facility. Now its all about the bottom line and professionals are not appreciated and forget about patient centered care. I noticed quickly that there was a lot of professional turnover and the nurses are expected to perform double the work. In fact, having the time to interact with a nurse in the ER was difficult, but believe it or not, we never saw a doctor during our entire 10 hour visit.It took us 2.5 hours to process through the ER. It was unacceptable!

This is my dad sitting in the hallway of the ER. At first they wouldn't let me back with him, but I made such a fuss, I was able to stay and escort him throughout the entire day. But when I reconnected with him, I found him holding a urine specimen cup and was parked in the hallway..... NOT KNOWING WHY! 
Peter remained in the parking lot for ten hours, while I was in the hospital with my dad. Peter said he wasn't leaving his "wingman" behind! I was honored. 

My dad endured a blood test, xrays, a ct scan, and two enemas! Not easy for him, but I have to imagine my presence helped. As my dad gets confused and disoriented easily and I wanted to make sure he was getting the best possible care!
The second enema was called soap suds. A soap suds enema is one way to treat constipation. While there are many types of enemas, a soap suds enema remains one of the most common types, especially for constipation. It’s a combination of distilled water and a small amount of soap. The soap mildly irritates your bowels, which helps to stimulate a bowel movement.

Can you see the small bucket in the background? All the fluid was infused with the hopes that is would break down this large massive poop ball that formed in his colon! 


Fortunately the testing revealed no cancer, no stones, and no bowel blockage. I am headed to bed because I am not thinking clearly and I am falling asleep while typing. As of tonight, my dad was admitted to the hospital, but like I told his doctor, I don't trust this hospital system one bit and I was concerned to leave my dad because no one was paying attention to him. 

No comments: