A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



May 15, 2024

Wednesday, May 15, 2024

Wednesday, May 15, 2024

Tonight's picture was taken in May of 2009. This was what a typical physical therapy session looked like for Mattie. We were in the middle of the pediatric unit hallway, and as you can see, we took up the entire space. Down the hallway, you will see a walker and wheelchair. Both belonged to Mattie. Mattie did not want to use his walker, but instead employed me as the human walker. Honestly I did whatever it took to get Mattie up, moving, and engaged. 


Quote of the day: And they can’t understand, what hurts more—missing the other person, or pretending not to. ~ Khadija Rupa


It was another day of juggling a thousand things. In addition to being the jack of all trades, I am learning the art of accounting. Truly I don't get one day of peace, as I am constantly doing tasks, working through crises, and tonight, when I was about to try to unwind, I received a bill in my inbox about my Prolia injection. When I saw the bill, I flipped out. The infusion center quoted me a price of $275. However, the bill is for close to $2,000. Honestly things just keep piling up on me and I truly ask.... how much can one person take? 

I literally was so strung out today, that I wheeled a big garbage bin into the backyard, and even in the rain, I weeded, picked up sticks, and trimmed things. I was out there for 90 minutes, and came away with a ton of debris. I have so much stress, anxiety, and pent up frustration that the only outlet I have is being outside. As you can see, I brought some roses from the garden inside. 

It is 9pm, and all I can say is God give me strength. May this heavy weight of my life lighten in time. I would even settle for a glimmer of hope, of which right now I see nothing positive. I am reading a book that I mentioned last night that discusses the importance of seeing three positive things in one's day. I am going back to basics, as I am thankful for my health, I am thankful for roses, and hummingbirds. 

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