A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



January 14, 2026

Wednesday, January 14, 2026

Wednesday, January 14, 2026

Tonight's picture was taken in January of 2009. That week we took Mattie to New York City to begin his experimental treatment. The hotel was amazing and gave us a penthouse suite and Mattie's child life specialist surprised us with a package which was awaiting us at the front desk. The package contained many of the items Mattie loved to play with, and she wanted to remind Mattie that his hospital family in Washington, DC was thinking of him.  


Quote of the day: The love of family is life’s greatest blessing, and missing them is its deepest sorrow. ~ Unknown


This morning was a circus show because I had to get my dad to his memory care center and I had to get my mom to her doctor's appointment. Mornings are becoming even harder than they once were, especially since my dad continues to have bathroom issues. Though I write about my dad, my mom has plenty of her own medical issue. My mom has no concept of time. In addition, she is glued to Facebook, so much so that she can in the middle of a task and then just stops what she is doing and becomes absorbed by her phone. Normally that is okay with me, but on mornings when we are on a time schedule, it is complicated! Once I got my dad showered, dressed, and downstairs for breakfast, I ran back upstairs to get something. I was upstairs for less than two minutes. When I came back downstairs, my mom was glued to her phone while eating and my dad was sitting opposite her, moaning and grimacing. She was unaware of any of this, but fortunately I got downstairs because I whisked my dad to the bathroom just in time. 

I took my mom to the hospital to visit with the rheumatologist, who is a lovely woman and my mom likes her! Once a year, my mom has to have a blood test for this doctor, and my mom dislikes needles. After her doctor appointment, I took my mom to the hospital's outpatient lab, because it is close to the doctor's office and all the people working in there are very competent. Just like last year, my mom was fearful about the blood test, but the tech was fabulous today and made the whole process very easy. What I have found time and time again is that medical personnel who love their jobs and interacting with patients, make everything go much more efficiently and effectively! 

The salt saga continues. Apparently all my complaining has generated action! I went from receiving NO SALT, to now 243 pounds of salt were delivered to my door step. Mind you I only ordered 120 pounds of salt on December 31. The seller never delivered my order, but charged my credit card. Yesterday I took on that issue and complained in writing twice! 

Here is the problem with what has happened to me since my divorce..... I now question everything, everyone's motive, agenda, and if I feel like I am being taken advantage of, I become extremely assertive. Yes, all my life, I have been a good advocate for other people, but now I have learned the hard and most painful way that I also MUST look out for my own interests and safety as well.  

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