Mattie Miracle 9th Annual Walk & Family Festival -- Raised over $97,000

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.

As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter

The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

July 21, 2016

Thursday, July 21, 2016

Thursday, July 21, 2016

Tonight's picture was taken in August of 2005. This is a photo I just recently found and I am so happy to have it! I remember this moment in time. We were visiting my parents in Los Angeles. A neighboring city was having a festival and closed down some streets for all sorts of activities. As you can see one of the activities was pony rides. This wasn't Mattie's first time riding a horse, which was why he looked much for confident in his saddle. Mattie had a great time that day on the ponies, petting other visiting barn yard animals, and even riding around on a mini train. 

Quote of the day: Talent wins games, but teamwork and intelligence wins championships. Michael Jordan

As of last evening, Peter and I have been hosting seven psychosocial professionals in Washington, DC. The Foundation paid for these individuals to come into town and meet in person for a seven hour long strategic planning meeting. Strategic planning is NO easy endeavor. It requires a great deal of time, mental energy, and a willingness to openly share ideas and resources. 

Fortunately Peter was a business consultant before entering his current occupation. This skill set is tremendous because typically non-profits have to pay thousands of dollars for what he did with us today, which was to develop goals, objectives, and activities necessary to implement the newly published psychosocial standards of care. This task may sound EASY, but it isn't because psychosocial care is quite complex. Especially when you factor in that multiple professions provide this care and we need the assistance of legislators and health insurance companies behind us to make this a reality. 

Here were the wonderful professionals in attendance:

Dr. Nina Muriel (Chief, Division of Pediatric Psychosocial Oncology
Senior Physician at Dana Farber Cancer Institute)
Dr. Bob Noll (Professor of Pediatrics, University of Pittsburgh School of Medicine)
Dr. Anne Kazak (Co-Director of the Nemours Center for Healthcare Delivery Science)
Dr. Mary Jo Kupst (Professor Emerita of Pediatrics, Medical College of Wisconsin)
Dr. Andrea Patenaude (Director of Psycho-Oncology Research in the Divsion of Pediatric Oncology, Pediatric Oncology, Dana-Farber Cancer Institute)
Dr. Lori Wiener (Co-Director, Behaviorial Health Core
Head, Psychosocial Support and Research Program, National Cancer Institute)
Dr. Pam Hinds (Associate Center Director, Center for Translational Science; Director, Nursing Research and Quality Outcomes, Children's National Health System)

The above photo was taken at dinner last night. This photo was taken today after our session concluded! By that point, we were all worn out and brain dead due to great concentration and focus.   

Peter and I want to thank Voxiva, INC for allowing us to use their wonderful conference room all day today! Voxiva has been incredibly supportive of us both emotionally and financially. In addition, Peter's boss (Justin, Co-CEO of Voxiva) even came in to chat with the group for thirty minutes. Justin shared his expertise working with health insurance companies and presented some viable options for us to pursue with the psychosocial standards. 

1 comment:

Margy Jost said...

I think it is quite amazing and speaks to the quality of the MATTIE MIRACLE FOUNDATION'S MISSION that you gathered Specialists in many fields related to Pediatric Oncology to work collaboratively on the standards of Psychosocial care for children in treatment for Cancer.
I applaud and support your Mission. This care is so needed and will help children & families tremendously who are facing a Childhoid Cancer diagnosis. Thanks from a person who cares so much for the whole child. All the years I work, each child was treated individually. They weren't their diagnosis, they were so much more!!!!