Mattie Miracle 8th Annual Walk & Family Festival was an $88,000 Success!!!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.

As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter

The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

Random Shots of Mattie, Family and Friends

November 2, 2016

Wednesday, November 2, 2016

Wednesday, November 2, 2016 -- Mattie Miracle celebrates its 7th birthday today!!!

Tonight's picture was taken in April of 2009, around Mattie's birthday. Mattie celebrated his 7th and last birthday in the hospital. That may sound awful, but in reality, the hospital had become like our home at that point and the people in it were our community and friends. Mattie's child life specialist, Linda, held a party for Mattie in the playroom and several of Mattie's close friends from school attended. Mattie loved decorating the playroom for his party and actually had a good time and was animated. Having a good time was definitely not a given, since social activities in general became much harder for Mattie as his treatment progressed. 

Quote of the day: Actively deciding to give to causes that move you deeply is far more fulfilling than the momentary gratification derived from signing a check and mailing it to a nonprofit about which you know little more than what's on the brochure they sent you. ~  Laura Arrillaga-Andreessen

We are proud Mattie Miracle parents and nurture the Foundation in Mattie's absence. The Foundation is now as old as Mattie was when he died from Osteosarcoma. Happy 7th birthday Mattie Miracle!!!

May we never forget the reason why the Foundation was created and the psychosocial lessons we learned from Mattie's battle with Osteosarcoma.

TOP FIVE Mattie Miracle Achievements:

1) Inspired and funded a four year long National Project to create evidence based psychosocial standards of care for children with cancer and their families... which were published in a top tier medical journal in December 2015.
2) Fund a Child Life Position at MedStar Georgetown University Hospital (2011 to present). A position that supports 3,500 children a year.
3) Established the Mattie Miracle Child Life Program Fund at MedStar Georgetown University Hospital.
4) Created and sponsor the FREE Snack/Item Cart for families caring for children at MedStar Georgetown University Hospital. A cart that provides snacks and toiletries to 2,500 families a year.
5) Advocated for the first psychosocial resolution (HR 262) for childhood cancer on Capitol Hill, to bring awareness to the fact that comprehensive cancer care must include psychosocial care.

It was a beautiful weather day in DC and Sunny and I took many walks. We had a monarch butterfly following us around, so I grabbed my photo and snapped a photo. I take it as a Mattie sign, on the 7th birthday of his Foundation.
Can you see Sunny heading toward the butterfly? He was equally fascinated by it as I was. 

1 comment:

Margy Jost said...

Hi Vicki,
Congratulations on the accomplishments of Mattie Miracle over the past seven years!! Each of the points you listed are wonderful accomplishments of the Foundation. In Mattie's memory, you & Peter are making a difference in an area of care that is important but has largely been ignored. Your Mission will make an enormous difference for children in treatment.

I agree with your quote wholeheartedly on many levels.

In closing, I just have to comment on Mattie's picture, celebrating his 7th and last birthday. He gave his Mattie smile although it is doubtful, he felt well that day. Mattie was a shining light and that shows in all his pictures. You know, I love seeing his picture but my most special ones are those of you & Mattie. Your smile is a bright & shining as Mattie's! I am sorry, Vicki that you & Peter only had Mattie for 7 years!