Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

March 10, 2025

Monday, March 10, 2025

Monday, March 10, 2025

Tonight's picture was taken in March of 2009. It was a big day in the pediatric units. There was a ribbon cutting ceremony for the child life playroom and Mattie was invited to cut the ribbon. The playroom meant a great deal to Mattie. Note that when Mattie began treatment at the hospital there was NO playroom. Instead, children gathered in the hallways and it was hard to have any sort of event. But while on treatment, the playroom was built. It was a God send to all of us, as it gave us a place to escape from the hospital room. Mattie was surrounded by Linda (his child life specialist), hospital leadership, and leadership from Toys R Us, who donated the playroom to the hospital. 


Quote of the day: There is no timestamp on trauma. There isn't a formula that you can insert yourself into to get from horror to healed. Be patient. Take up space. Let your journey be the balm. ~ Dawn Serra


I truthfully can't make up what I face in any given day. Today was another winner. By 10am, I felt like I went ten rounds. At 8am, while making breakfast, I looked outside the kitchen window and immediately saw the garden fountain wasn't on. This fountain is on a timer, and goes on religiously at 7:30am. It is one of the many features that came with the house that I love. I love watching the birds who frequent this water supply throughout the year. I keep a bird bath warming coil in the fountain over the winter, so that I can keep the feature running without freezing. When I saw that the fountain did not turn on, I panicked. I ran to the circuit breaker to see if something tripped. It hadn't. Then I went outside to see if the GFCI had to be reset. Nope, it was fine. So then I worried that either the pump stopped working or something was wrong with the timer. Before going right over the deep end, I thought this through! What if the reason the fountain did not go on was because we just lost an hour due to daylight savings time? So I decided to wait until 8:30am. Sure enough, at 8:30am, the timer triggered and the fountain started. I viewed that as a blessing. 

At 8:30am, the crew to fix our stone walkway showed up, along with my landscaper. I truly rely on Ritchie, my landscaper, for all the problems outside of the house. He is an honest, kind, and professional person. He understands all that I am balancing and never tries to upsell me on anything. Instead works with me. What he said today was that most people couldn't handle managing this house by themselves, on top of everything else I juggle. He wanted me to know that I am doing a great job. I appreciated the feedback and support. 

Any case, Ritchie talked to me about all the front bushes. He agrees the tops got winter burned, but down at the base of the shrubs is green. So hopefully in a month or so they will bounce back to life. Therefore, I am in a holding pattern, and I hoping they return to their health, so I do not have to replace them. He told me NOT to cut the brown stuff back! Meanwhile the stone guys were here for about 8 hours today, managing all the stones that popped up making the walkway unsafe. 

The crew needed me to turn on the hoses, so they could mix cement. The hoses were shut off for the winter. I wasn't aware that the hoses needed to be turned on today and really did not allot the time for this, as I had to go upstairs to wake my dad, shower him, and get him to his memory care program. But my schedule was put on pause because I had to go to the basement and turn on the water supply lines to all the hoses. Here's where the fun started. 

The water faucets look like this and next to each turn dial is a bleeder valve (circled in red). Mind you I did winterize these lines in November, so this isn't a new activity for me. However, when I turned on the faucet this morning, water was shooting out of the bleeder valve. No matter how tight I tried to close it, it wouldn't stop leaking. Naturally I began to panic. I was running around getting towels and grabbed a wrench. I finally tightened the bleeder valve enough that the gushing water stopped. I was paranoid all day that I was going to flood the house. I even text messaged my plumber, who talked me off the ledge. Cody said this can happen and as usual I handled it the right way. Cody jokes with me all the time and says.... I am becoming a plumber. 

Truthfully after the flooding, I was frazzled. But it did not end there. The company who are managing my temporary cable arrived. They came to dig a trench for the permanent cable. I literally couldn't manage one more thing. Any case, after stabilizing everything, I ran upstairs to get my dad moving. When I got to their bedroom, I found my dad half in the bed and half out of the bed. He wasn't comfortable and was cold (as he wasn't under the covers). In addition, he twisted his back lying like this and was in pain. How my mom doesn't see him like this is beyond me, but that's a conversation for another time. Any case, I got my dad up and started the morning process. What I learned today is that I will need to check on my dad several times in the morning, to make sure he is situated correctly before starting my morning chores downstairs. 

Tonight's feat was managing a bulb that broke inside the socket. The glass came out but not the metal part of the bulb. Meanwhile the utility room in the basement was dark, so I had to fix this! If I can avoid calling for help, I do! So I got my needle nose plyers out and did exactly what this photo illustrates. Needless to say, tonight I have light! 

On top of all of this, I am still working the Prolia insurance problem from yesterday. Which meant that I had to cancel my Friday infusion, because there is no way I can work this insurance snafu out in time. Why getting access to this drug is so complicated is besides me. 

Tomorrow's feat will be working with the septic company to pump out our septic system. I am hoping that goes off without a hitch, but I am preparing for the worst with the permanent cable replacement. The company has already told me this could impact my TV and WIFI service has they remove the temporary cable and replace it with a permanent one. The reason why I am on edge is because unlike the other houses on the block, I have a persistent cable issue. The cable company tells me that people like me are one in a million. It is the way the cable is laid and directed to the house. What I do know is that I am tired of being so unique in all the wrong ways. 

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