A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



November 17, 2025

Monday, November 17, 2025

Monday, November 17, 2025

Tonight's picture was taken in November of 2003. Mattie was a year and half old and he was pictured with one of his favorite puzzles! In fact, besides vehicles and building materials, Mattie LOVED puzzles. I remember when he was in the hospital at age 6, he was doing 1000 piece puzzles with me. He had the patience to work through the pieces, and we would do a bit at a time each day. It is hard to believe that Mattie would be 23 years old if he were alive today  and that he has been gone far more years than he was alive. A very sobering reality. 



Quote of the day: Do our dreams carry messages from the great beyond, sent by the people we have lost, or are they a reflection of our desperation and wishful thinking? Zeina Kassem


This morning was another juggling act. As I had to get my dad to his memory care center, I had to make sure my mom was ready for her physical therapy session, and I had to get to my own ophthalmology appointment. Somehow I made it work and was even able to run chores in the process. I have become the ultimate multi-tasker. I have no idea what a slow day looks like, as I haven't had one for four years!

I started seeing this eye doctor when I moved into my house in 2021. So in essence he has been following my eye condition for 4 years. My previous doctor wanted to do surgery on my eyes, and given that I had little trust in his perspective, I changed practices. When I checked into the office today, they proceeded to tell me that they no longer accept my health insurance. I did not get it because I have the same insurer as when I was married, I just have changed plans. It is a good plan that all of my other providers accept! Yet this receptionist kept at it with me and said that I have Medicaid and therefore, their practice doesn't accept it. Keep in mind that I do not have Medicaid. I thought she handled this whole situation very poorly and frankly she should not have had such an open conversation about my insurance in the middle of the waiting room. 

When I finally saw the doctor, I explained what had transpired and he apologized for his receptionist, wanted to know what insurance I had and said that he would discount today's appointment, since I had to pay out of pocket. Any case, none of this sat well with me today, since I pay monthly for health insurance. So eventually when I got home, I called my insurer. I walked them through everything that happened and my insurer said the receptionist gave me incorrect information! Today's appointment wasn't covered because of my insurance plan, it wasn't covered because the doctor's office has not activated their contract with my health insurer. By the time I found out this information, the doctor's office was closed. But just wait until tomorrow, as I do not do well with incorrect information, or when I am blamed for an issue that is out of my control! I waste more time fighting health insurance claims, not just for me but for all three of us. That alone is exhausting. 

Meanwhile my car went in for service today because it is having electrical issues! My service provider called me to let me know that they can see the problem I am reporting, but they have NO IDEA how to solve it! So I have been asked to give them more time. Instills confidence, no?!

I end tonight's posting with these flowers. My friend Carolyn came over tonight to pick up a bundle of Foundation items that she is delivering tomorrow to one of the hospitals we support. Carolyn has been part of my Mattie journey from the beginning as our children went to preschool together. For years, Carolyn has brought me flowers... flowers that always include Mattie Miracle colors and sunflowers! I can't tell you how much these flowers mean to me, because as holidays approach, it hits me deeply about all my losses. 

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