Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

August 27, 2008

Wednesday, August 27, 2008

Wednesday, August 27, 2008
Mattie woke up at around 7am today. He walked into our room and tapped on my arm and then jumped into bed right next to me. I think he got the feeling that I wasn't getting up, so he figured... if you can't beat em, join em. Mattie and I literally went back to sleep and did not get up until 9am. A world's record for Mattie, since he is like Peter, they are both early risers. Meanwhile, Pete was up at 7am.

Mattie was excited to be having a playdate today with his buddy Abigail. Ann (Abigail's mom) and Abigail came over at 10:30am. Abigail and Mattie did all sorts of fun things together, from running with JJ, to setting up trains and tracks, and watching Scooby Doo. The kids were adorable watching Scooby Doo together, and I saw Mattie eat more munchkins from Dunkin Donuts today than he has in a lifetime. It was wonderful to see him eating and laughing. I also heard later on in the day from JJ's owner, JP, that JJ enjoyed meeting Abigail! Thanks Ann for the coffee, donuts, and of course brainstorming September's calendar with us and ways to keep Mattie engaged at School. Also, a big thank you to the Petersons for their gift bag for Mattie. He thoroughly enjoyed it so Thank you!
Mattie received several wonderful e-mails today. Coach Dave (the head coach of SSSAS's football team) gave Mattie an update about the latest game and Mattie feels proud to be an unofficial member of the team. Mattie loves e-cards, and he received one from Kim (Mattie's preschool director). The card literally had a talking dog on it, and we laughed because it reminded us of JJ, well that is if JJ could talk to us. In addition, Mattie got a lovely e-card from Lorraine, our close family friend. In addition, Mattie has developed several e-mail pen pals. Thank you Charlotte, Allen, and Kazu for writing to Mattie daily! Allen is a cousin of Mattie's who lives in Plattsburg, NY. Mattie has never met Allen, but Allen keeps track of Mattie and they talk about all sorts of things. Thanks Allen! We also received several prayer cards today from family and friends, and we so appreciate all the masses and prayers being offered in Mattie's honor!

Tonight we had a visitor, Rana. Rana works with Peter at Voxiva. Rana has offered to prepare us dinner every Wednesday evening. It is a very generous offer! She delivered us a delicious and nutritious dinner and her Caribbean chicken reminded me of our trips to the islands. Isn't it funny how food can trigger certain memories for you! Rana also delivered a package to us that was sent to our family by Capital Health, a Canadian client of Peter's. I have heard a lot about the Capital Health (ARTSSN Team) from Peter over the years. Peter really enjoys the connections he has made with his Canadian friends, and it means a great deal to us, that they would think about our family during this difficult time. They sent us Oiler's (for those non-northern climate folks... it's hockey) jerseys and matching caps. We need to take a family picture of this to capture this moment. Thank you Jim for the package and for also sending us the chocolate. This is definitely the direct way to capture my heart! In addition to enjoying the care package, Mattie also loved the box the gift was sent in. You can see below how Mattie transformed the box into a robot.
It was another good day for Mattie. It is very hard to accept the fact that he feels energetic today but that by tomorrow he definitely will be dealing with the side effects of chemo all over again. Of course we know he needs the chemo, but it is still hard as a parent to cart your child off to the hospital and expose him to such powerful medicines that in the short term only (hopefully) make him so ill. When we are home the first question each day from Mattie is... is today a hospital day?! It is amazing how Mattie accepts this process, a process that I myself am still having issues with.
Thank you for reading the blog, for staying connected to our family, for your thoughts and prayers, and for finding the energy and compassion in your hearts to help us each day in this painful journey.

1 comment:

Julia said...

Hi Mattie, Vicki, and Pete,
Hope today's hospital day went smoothly. It's great to see that Mattie enjoyed his days at home! Love and hugs, Julia and Dave Lee