Mattie Miracle 15th Anniversary Video

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

July 24, 2022

Sunday, July 24, 2022

Sunday, July 24, 2022

Tonight's picture was taken in July of 2008. It was actually four days after Mattie was diagnosed with cancer. That day we took Mattie to Roosevelt Island. It was always our retreat from the city and a place that Mattie loved to explore. That day we took Mattie's remote controlled boats to the Island and Mattie got to float and drive them in the water. Also ironic, because prior to Mattie getting diagnosed with cancer, I did not let him in the Potomac River, much less float a boat in it. As I deemed the water mucky and dirty. However, once diagnosed, the boats went in the water and Mattie had those wonderful memorable adventures on the Island. 



Quote of the day: If you learn to listen for clues as to how I feel instead of what I say, you will be able to understand me much better. ~ Mara Botonis


Today's quote is spot on, especially when caring for someone with dementia. I know my dad's every movement so well that he really doesn't have to say much. I can tell exactly what he needs based on his posture, facial expression or sounds. This week I left home for a couple of hours, on Thursday and on Saturday. One was for a friend's party and another was for a birthday luncheon for me. Though I tried to prepare my dad, I think my absence caused him anxiety and stress. Which for him triggered a bout of constipation. With his irritable bowel syndrome, I can get both extremely. Usually with him it is diarrhea, but this week's anxiety triggered the opposite problem. Honestly my dad with constipation feels like a national crisis. 

Yesterday when I got back home, out came the Senokot. Mind you my dad takes four capsules of Metamucil everyday. However, sometimes that isn't enough, and I have to tweak what he gets. I learned this balancing act from his gastroenterologist in Los Angeles. Thankfully I was part of that ordeal and conversation there, because now I know what arsenal of things I need here to be successful with him. 

Check out all the generous items donated to us from friends. I decided to start our November item drive early! Now that we have four carts, it takes a lot to stock them. Particularly the one at the National Institutes of Health. For all of our other carts, we provide funding directly to hospitals to stock our carts throughout the year. This isn't true for our cart that supports a government facility. Instead they can only accept gifts in kind. So I have to be more strategic about getting items for that cart. 

Peter snapped a photo of me before I left for my birthday luncheon yesterday. 
This is our first year growing sunflowers! They have taken off in our garden and the bees love it. Peter captured this bee on one of the sunflowers today. I am trying to make a point of it now to spend at least five to 10 minutes each day outside. As we are surrounded by greenery and beauty and my mind needs this reprieve. 
A big beautiful Spicebush Swallowtail visited our garden and hung out on our metal butterfly stake. Peter captured this precious moment! Rest assured there are Mattie reminders all over our garden.... the moon, the sun, and butterfly garden art!


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