Sunday, July 24, 2022
Tonight's picture was taken in July of 2008. It was actually four days after Mattie was diagnosed with cancer. That day we took Mattie to Roosevelt Island. It was always our retreat from the city and a place that Mattie loved to explore. That day we took Mattie's remote controlled boats to the Island and Mattie got to float and drive them in the water. Also ironic, because prior to Mattie getting diagnosed with cancer, I did not let him in the Potomac River, much less float a boat in it. As I deemed the water mucky and dirty. However, once diagnosed, the boats went in the water and Mattie had those wonderful memorable adventures on the Island.
Quote of the day: If you learn to listen for clues as to how I feel instead of what I say, you will be able to understand me much better. ~ Mara Botonis
Today's quote is spot on, especially when caring for someone with dementia. I know my dad's every movement so well that he really doesn't have to say much. I can tell exactly what he needs based on his posture, facial expression or sounds. This week I left home for a couple of hours, on Thursday and on Saturday. One was for a friend's party and another was for a birthday luncheon for me. Though I tried to prepare my dad, I think my absence caused him anxiety and stress. Which for him triggered a bout of constipation. With his irritable bowel syndrome, I can get both extremely. Usually with him it is diarrhea, but this week's anxiety triggered the opposite problem. Honestly my dad with constipation feels like a national crisis.
Yesterday when I got back home, out came the Senokot. Mind you my dad takes four capsules of Metamucil everyday. However, sometimes that isn't enough, and I have to tweak what he gets. I learned this balancing act from his gastroenterologist in Los Angeles. Thankfully I was part of that ordeal and conversation there, because now I know what arsenal of things I need here to be successful with him.
Check out all the generous items donated to us from friends. I decided to start our November item drive early! Now that we have four carts, it takes a lot to stock them. Particularly the one at the National Institutes of Health. For all of our other carts, we provide funding directly to hospitals to stock our carts throughout the year. This isn't true for our cart that supports a government facility. Instead they can only accept gifts in kind. So I have to be more strategic about getting items for that cart. Peter snapped a photo of me before I left for my birthday luncheon yesterday.This is our first year growing sunflowers! They have taken off in our garden and the bees love it. Peter captured this bee on one of the sunflowers today. I am trying to make a point of it now to spend at least five to 10 minutes each day outside. As we are surrounded by greenery and beauty and my mind needs this reprieve.
A big beautiful Spicebush Swallowtail visited our garden and hung out on our metal butterfly stake. Peter captured this precious moment! Rest assured there are Mattie reminders all over our garden.... the moon, the sun, and butterfly garden art!
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