Mattie Miracle Walk 2023 was a $131,249 success!

Mattie Miracle Cancer Foundation Promotional Video

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to us that you take the time to write to us and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful to us and help support us through very challenging times. To you we are forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically stop writing on September 9, 2010. However, at the moment, I feel like our journey with grief still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with us, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki and Peter



The Mattie Miracle Cancer Foundation celebrates its 7th anniversary!

The Mattie Miracle Cancer Foundation was created in the honor of Mattie.

We are a 501(c)(3) Public Charity. We are dedicated to increasing childhood cancer awareness, education, advocacy, research and psychosocial support services to children, their families and medical personnel. Children and their families will be supported throughout the cancer treatment journey, to ensure access to quality psychosocial and mental health care, and to enable children to cope with cancer so they can lead happy and productive lives. Please visit the website at: www.mattiemiracle.com and take some time to explore the site.

We have only gotten this far because of people like yourself, who have supported us through thick and thin. So thank you for your continued support and caring, and remember:

.... Let's Make the Miracle Happen and Stomp Out Childhood Cancer!

A Remembrance Video of Mattie

June 18, 2019

Tuesday, June 18, 2019

Tuesday, June 18, 2019 -- Mattie died 508 weeks ago today.

Tonight's picture was taken in June of 2004. Mattie was two years old and I have to say this is one of my favorite candid photos I snapped! Mattie loved playing with his Mr. Potato Head toy, and the toy came with accessories. One being these plastic glasses. Instead of putting them on Mr. Potato Head, Mattie donned them on himself! Not only wearing them on, but walking around our home with them upside down!






Quote of the day: For a chronic migraine, there are no triggers, life is my trigger. For chronic migraineurs there are no cures, there are only patches that will get you through to the next bout. Have we tried, acupuncture, herbal remedies, diets, standing upside down on our heads? Yes. The answer is if we have gotten diagnosed with chronic migraines then we have tried everything, and if by chance we have been able to get up and put our mask on that day please let us wear it, under our sunglasses and large hats. It took a lot to get there, and ain’t nobody got spoons for that. ~ Emily A.


Today I went for my follow up appointment with my neurologist. There are some doctors who I see continuously throughout the calendar year. This neurologist came into my life about two months after Mattie died. Mind you I had seen several others before him. But he came highly recommended from Mattie's art therapist.

Like Emily in tonight's quote, I too have been diagnosed with chronic migraines, as well as cluster headaches. Cluster headaches are horrific, they seem to last a long time (I am talking weeks), and are debilitating. In fact, some people become suicidal because of them. In any case, my neurologist said to me today that he is confident in time my headaches will go away. I absolutely LAUGHED. I laughed because I got my first migraine on the day I went into labor, back in 2002, and I haven't had a headache free day since. After I laughed, my doctor retracted his sentence and said...... well in 100 years, things will be different. REALLY? My response was in 100 years..... I will be dead. So certainly I won't be dealing with headaches. I am not sure who was more humorous today, him or me? It was a toss up! FYI, my nickname for this doctor is 'Mr. Personality.' You connect the dots. 

Yesterday the iconic fashion designer, Gloria Vanderbilt, died. While listening to the radio, I got to hear a clip of her being interviewed after the suicide of her child, Carter Cooper (age 23). Frankly when I heard it, I was stunned, because she said to be human, we must experience pain. It is only through pain that we can know joy. Literally, I was yelling at the radio.... 'YOU GOT TO BE KIDDING.' So I dug a little further today and found an article in People Magazine. I know not too scientific, but it gave me a glimpse into how a child's death impacts a parent and the entire family. I was actually much more satisfied reading the article than the one minute blurb I heard on the radio. The blurb seems to capture Vanderbilt's feelings out of context. 

Gloria Vanderbilt explained in the article (see below) that even 28 years after her son's death, she still hasn't reached closure. She goes onto say that Christmas' have never been the same either. She lost a son to suicide and I lost a son to cancer, and yet we have very similar views of the world. Because unfortunately such a tragic and unexpected loss, leaves a parent and family traumatized. The trauma is carried with us always. The only difference is that over time we develop a way to function with it. Yet the outside world doesn't always see our scars, but I assure you those of us who have experienced such a traumatic loss.... we see these scars in ourselves and others, as if they were very fresh and very visible. 

How Gloria Vanderbilt Coped After the Suicide of Her Son, Carter Cooper:
https://people.com/style/gloria-vanderbilt-on-son-carter-cooper-death/

No comments: