A Remembrance Video of Mattie

Thank you for keeping Mattie's memory alive!

Dear Mattie Blog Readers,

It means a great deal to me that you take the time to write and to share your thoughts, feelings, and reflections on Mattie's battle and death. Your messages are very meaningful and help support me through very challenging times. I am forever grateful. As my readers know, I promised to write the blog for a year after Mattie's death, which would mean that I could technically have stopped writing on September 9, 2010. However, like my journey with grief there is so much that still needs to be processed and fortunately I have a willing support network still committed to reading. Therefore, the blog continues on. If I should find the need to stop writing, I assure you I will give you advanced notice. In the mean time, thank you for reading, thank you for having the courage to share this journey with me, and most importantly thank you for keeping Mattie's memory alive.


As Mattie would say, Ooga Booga (meaning, I LOVE YOU)! Vicki



June 30, 2023

Friday, June 30, 2023

Friday, June 30, 2023

Tonight's picture was taken in June of 2007. Mattie was five years old and this was his very first roller coaster ride. We took Mattie to Dutch Wonderland in Pennsylvania and when I saw this ride, my initial reaction was OH NO! But Peter loves roller coasters and we asked Mattie if he wanted to try it! I was sure Mattie would say NO! But he surprised me. Typically Mattie had a healthy level of caution when it came to new experiences. But with this ride, he took to it like a duck to water. Not only did the first ride go well, they went on it multiple times during that visit. Ironically while I was worried about Mattie, I was watching a family on line for the ride having an argument with their son, who was a little kid. The son did not want to go on the ride and was scared. The parents were making fun of the child and insisted he had to go on the ride. How I did not throttle those parents that day, I have no idea. But nonetheless I did say something, as I don't think kids should be forced to do an activity they aren't ready for. 


Quote of the day: Like tiny seeds with potent power to push through tough ground and become mighty trees, we hold innate reserves of unimaginable strength. We are resilient. ~ Catherine DeVrye


It was another early morning here! I have never been a morning person, but since my parents have moved in, I have yet to sleep past 7am. In fact, a 7am start would be sleeping in. I got my dad off to his memory care center and then I promised to take my mom to the mall and out to lunch. I can see that my mom truly doesn't feel secure walking without holding my hand. She manages at home, but if we are outside the house, she holds on. My mom has developed a very strange way of walking. It is hard to describe, but I notice when I am out in public, people stare at my mom. I guess I have gotten used to her posture, her frail and thin state, and her awkward gait, as she walks with her feet spread a part. Which I am sure is a result of her balance issues. 

When my mom moved in with me, she was 90 pounds. She was extremely frail, hunched over, and her head was tipped to the left. She had no idea that she did not hold her head upright and even worse, NO ONE else told her! I had to confront the issue head on, as well as the issue regarding her weight. My dad's caregivers in Los Angeles told me my mom used to measure out only 1/4 cup of cereal to eat in the morning. Now that my mom is living with me, I portion out her food and she now eats at least two full meals a day. Thankfully she is gaining weight because being emaciated is problematic. 

Peter is now home from Chicago and tonight is the FIRST night we are going out to dinner without my parents in tow. I made the decision that it has to happen and I can't have any guilt about this decision. I need the time to eat like a normal human being, without managing needs, problems and trips to the bathroom. I also welcome the opportunity to talk with Peter without constant interruptions. In fact, just like when Mattie had cancer, the primary way Peter and I communicate now is through text messages. Otherwise, we can't have a dialogue without commentary and distractions. I realize our current lifestyle requires some change, and this week I already made the choice to have my dad stay longer at the memory care center, I decided my parents can stay home while Peter and I have a moment to ourselves, and I am also considering other options in my head. But the point is, I am actively trying to make a change. Which I assure you is hard, given the circus show I balance at any given moment in the day. 

June 29, 2023

Thursday, June 29, 2023

Thursday, June 29, 2023

Tonight's picture was taken in June of 2007. Mattie was five years old. That weekend, we took Mattie to Dutch Wonderland in Pennsylvania. This was his first roller coaster ride. I wasn't sure Mattie was going to like it, particularly because I have NEVER been on a roller coaster, and I am just fine with that! They scare me, as I don't do well with motion. Fortunately Peter does, and what I learned that day was Mattie LOVED roller coasters. I can't tell you how many times he went on it. He loved the thrill, the movement, and doing an activity with his dad. I was just happy to be on the ground and to photograph that special moment in time. 


Quote of the day: The friend in my adversity I shall always cherish most. I can better trust those who helped to relieve the gloom of my dark hours than those who are so ready to enjoy with me the sunshine of my prosperity. ~ Ulysses S. Grant


You know when you just had about enough?! Well this morning I reached my maximum in the overload department. I was juggling both of my parents, my dad's physical therapist, and the artist who is working on painting landscapes of our home. In the midst of this, chaos ensued starting at 7:30am in our cul de sac. 

Literally at one point trucks had blocked access in or out of our driveway. I was directing cars up and down our driveway, and at one point, I moved my car into the street and had my dad's physical therapist park in the garage. While I was walking in the street from my car, I interacted with one of the crew members on site at my neighbor's house. It wasn't one of my finest hours as I told him I have chaos inside my house and now thanks to him and his crew, I have total chaos outside and all around my house. Some days I can manage all the trucks better than others, but when I have people coming over to either help my parents or service our house, I have no patience what so ever. No patience because what I balance on any given day is already the impossible.

June 28, 2023

Wednesday, June 28, 2023

Wednesday, June 28, 2023

Tonight's picture was taken in June of 2007. We were in Pennsylvania that weekend and while driving around, we noticed this round rainbow thing in the middle of a field. Literally there wasn't a soul around! We weren't looking for this, we just saw it and we were intrigued. So we parked the car and went out to inspect it! It turned out to be an in-ground trampoline. Peter and Mattie had a great time running around and jumping! It was such a wonderful stop and completely unplanned! Somehow the spontaneous nature of this makes it very memorable to me. 



Quote of the day: Hope is the thing with feathers that perches in the soul – and sings the tunes without the words – and never stops at all. ~ Emily Dickinson


When my paternal uncle died, I got his poster of the Creature of the Black Lagoon. My uncle wanted me to have it, as he was involved in the 1982 TV production. In addition, if you look closely you will see an X on one of the round buildings (Marina City). This is where my uncle used to live. 






This morning, Peter sent me several photos from his trip to Chicago. His hotel room looks right onto Marina City. I have never visited Chicago, I have only been through O'Hare Airport. But the photos Peter sent me made me pause, as the city photographs beautifully. Though I haven't seen Marina City in person, it was wonderful to receive these photos. It would have made my uncle smile. 





As Peter was up early and exercising, he captured the sunrising over the marina. A sight Mattie would have appreciated. 


It is funny, two friends and contributors to Mattie Miracle wrote to me this week and asked how I liked our trip to Portland, Oregon. I literally had to pause because I had no idea what they were talking about. Then I realized, Peter must have posted photos from his business trip on Facebook. People naturally assumed that we were traveling together, as this is something we used to do in the past. 

I would have to say that caregiving for a loved one or in my case, two, is very socially isolating. Since I have experienced intense caregiving for a child and now for my parents, I am having all sorts of revelations. 

Today was an absolute whirlwind, because I had to take my dad to his memory care center and herd my mom out of the house in order to get to her salon appointment in the city on time. Though I got up at 6am, I still got to the salon late. Every aspect of my life is stressed. This is what I literally did from 6am until I left the house at 9:40am:

  • got up, 
  • fed Indie, 
  • gave Sunny his chemo, pills, and food, 
  • got myself showered and dressed, 
  • then went downstairs to make an afternoon snack for my mom, as well as made breakfast, 
  • then cleaned out Indie's litter box 
  • vacuumed on the first floor, cleaned kitchen counters, and mopped the tiles on the first floor
  • went back upstairs and woke up my dad
  • made my parent's bed
  • got my dad in the shower, then got him dressed (which is a production, as he provides no help in the process), and downstairs for breakfast
  • threw out trash and started laundry
  • while trying to eat my own breakfast, my dad had to go to the bathroom. Another production,
  • cleaned up breakfast dishes
  • got my parents into the car


In the midst of driving around, my mom constantly mentions that she misses driving and wants to drive. Yesterday she suggested that she drive my dad to appointments. If you watched my mom walk or reason through certain things, you would understand immediately why I took her driving privileges away. I feel strongly about this as I have a responsibility to keep her safe as well as the public. Though I wish she could drive, entertain herself, and be independent. Those days are long gone. I notice my mom NO LONGER reads books either. She won't admit it, but I know her memory issues make it difficult to  track a chapter book!  If my mom isn't pining about driving, then she is upset she can't bicycle ride. She wants a bicycle. Again, when she surfaced this today, I told her she needs to master the art of walking first. I have discussed this with her physical therapist, and she agrees, NO bicycle riding! 

So in addition to intense tasks, there is also a deep and wearing emotional toll to caregiving for two people with dementia. I serve so many roles for them and one of them requires me saying NO, to stop and question their decisions, and of course with my mom this triggers an immediate argument. Though Mattie had cancer and we were living through that hellish journey, in many ways, there were aspects of Mattie's care that were easier to cope with than what I am facing now. I think that speaks volumes about my current situation. 

June 27, 2023

Tuesday, June 27, 2023

Tuesday, June 27, 2023 -- Mattie died 717 weeks ago today.

Tonight's picture was taken in June of 2007. Mattie was five years old! That weekend we took him to Pennsylvania to have an adventure at Dutch Wonderland. At the hotel, the chef took a liking to Mattie. The chef enjoyed watching Mattie eat waffles each morning. Basically the chef prepared the batter, but then guests got to pour it into the waffle maker themselves. Of course Mattie LOVED that process! Before leaving the dining room that day, the chef dawned this hat on Mattie. Mattie was very proud of his chef's hat and that weekend away, with just the three of us, is one that I will always remember and cherish. 


Quote of the day: Persistence and resilience only come from having been given the chance to work through difficult problems. ~ Gever Tulley


Yesterday I made the decision to contact my dad's memory care center to see if he could attend today! That means that this week, my dad will be going to the center four days, instead of three. At first I felt guilty about my request, but then I dropped that feeling quickly, because I came to the realization that I needed a break. I made the right decision! In addition, instead of my dad attending the program for only four hours today (which is what he usually does), I did not pick him up until after 4pm. So that meant he was at the center six hours today. Ironically he did not notice, which is no surprise, as he has no concept of time. 

I had a conference call this morning about a national research project Mattie Miracle is involved with, as I helped to secure a $115,000 grant to study the implementation of the Psychosocial Standards of Care. I wanted to be able to participate in this call without worrying about my dad and his needs. The call was only an hour long, but being able to focus on something other than caregiving was a glorious feeling. Believe it or not, in the midst of my mountain of chores and tasks, I can still think about Mattie Miracle. Over the last few weeks, I have developed the concept of a new implementation award for clinicians and researchers. Toward the end of today's conference call, I strategized the next steps on making this a reality. For me, I celebrate the little things because truthfully the fact that I can still run the Foundation, is a Mattie Miracle in and of itself. 

Without my dad in tow today, I was able to get many things done, as well as take my mom out for tea. We got caught in a deluge of rain, but honestly today my mom and I felt much more relaxed. Peter has been telling me to leave my dad longer at the memory care center. I have been hesitant because I am always worried about my dad. But I listened to Peter, and finally absorbed what he has been saying to me. It was a great decision and it was a good learning lesson for me today. 

June 26, 2023

Monday, June 26, 2023

Monday, June 26, 2023

Tonight's picture was taken in June of 2007. Mattie was five years old. That weekend, we took Mattie to Dutch Wonderland in Pennsylvania. It is a theme park geared to preschoolers and young children. Along our journey, we toured Amish country and dined at the well known Plain & Fancy restaurant. The restaurant had a barn attached to it and it was perfect place for little ones to run around in the hay! Of course no trip was complete for me without plenty of photos. All I can say is, thank goodness I never traveled anywhere without my camera! Of course at the time it would never have dawned on me that photos would be the only things left I had of Mattie. Back then, I am sure I snapped photos with the thinking that Mattie would love having these memories some day. 


Quote of the day: It’s your reaction to adversity, not adversity itself that determines how your life’s story will develop. ~ Dieter F. Uchtdorf


My morning started off with this photo! My friend Christine emailed it to me. I can't tell you how much this perked me up. Christine and I became friends when Mattie was in kindergarten. Mattie and her son, Campbell, were "best friends." Our boys spent a lot of time together and through their bond, we became connected and developed a friendship. Christine was an integral part of Team Mattie and when our Foundation had a live Walk event, Christine managed our registration tent. Which is a big job and not for the meek. Christine knows how much I love sunflowers and how they symbolize compassion, support, and community. I can't tell you how many sunflowers I received when Mattie was in treatment. Every time we came home from the hospital, I was greeted with these happy yellow flower faces.  

Peter is traveling again this week. Last week was Portland, Oregon, this week is Chicago. It was another busy day for me, and somehow I have strained my back. I can't turn to the left or bend down. It makes caregiving truly challenging. The irony is I did not hurt myself from my daily routine, but from sitting too much by the computer doing Foundation work. May is fundraising season for us, and when not working with my parents, I was glued to the computer. The pain is intense and I am hoping within a few days, the pain is more manageable.

The Foundation's June e-newsletter went out to supporters today. In the newsletter, I highlighted the Walk 2023 video that I created last week. I was determined to make sure a video was created! Check it out......



On Saturday, I bought some beautiful tomatoes at the farmer's market. So I took the time tonight to prepare homemade tomato sauce, which I will use later this week. I started by caramelizing onions and garlic. 
I blanched five large tomatoes. Honestly I find store bought tomatoes have NO taste, so I can only do this when I can pick fresh tomatoes. 
After going in a boiling water bath for a minute, I pulled the tomatoes and put them in a bath of cold water. I love how the easily the skins come right over the tomatoes! 
The cooking process is underway!
I threw some basil and oregano, from our garden, into the the pot! I will let this simmer for several hours and boil down. We shall see how this turns out!

June 25, 2023

Sunday, June 25, 2023

Sunday, June 25, 2023

Tonight's picture was taken in May of 2006. That Memorial Day weekend, we took Mattie to Sesame Street Place in Pennsylvania. Mattie had an amazing time! He and Peter went on every ride that was possible. I was so impressed that Mattie went down this huge water slide with Peter, because just a few years prior to this, Mattie was deathly afraid of slides of all kinds and water. But we kept at it, introducing him slowly to slides and water, and eventually he LOVED them. 


Quote of the day: When everything seems to be going against you, remember that the airplane takes off against the wind, not with it. ~ Henry Ford


On Peter's walk this morning, he was greeted by deer. These are the creatures I absolutely love seeing since we moved to Virginia. 
In comparison to the above photo, we found this in our backyard today! SORRY, I am NOT a snake fan. I don't care if this Black Snake isn't venomous. I think snakes are creepy and ever since I was a kid, they terrify me!
The highlight of the day was we had Kim Richards over to begin sketching concepts for the paintings she will be doing of our house. Kim is a plein air painter and I fell in love with her work when I met her at the Vale Arts Show last year. We have a two story wall in our family room, and honestly none of us could agree about what should be displayed on this wall. 

When I thought of the idea to ask Kim to create landscapes of our house, everyone agreed. This will be a process in the making, and today was day 1 on sketching and creating. I have asked Kim to include Sunny in one of the landscape paintings. Sunny was intrigued by Kim's presence and ironically stayed close to her. 
I snapped a photo of Kim and you can see how close Sunny was.... and a few times he even went up to her and sniffed her paints. He is quite a pup!!!



June 24, 2023

Saturday, June 24, 2023

Saturday, June 24, 2023

Tonight's picture was taken on June 18, 2006. Mattie was four years old and we were out celebrating Father's Day. Mattie loved Clyde's restaurants and the irony is now decades later, I am back dining weekly at Clyde's because my parents love it too. When dining with Mattie, I traveled with a bag of tricks. You name it... puzzles, books, toy cars, toy trains, crayons, activity books, you get the picture!!! In this photo you can see Mattie and Peter busy at work while we were waiting for our food. 


Quote of the day: My scars remind me that I did indeed survive my deepest wounds. That in itself is an accomplishment. And they bring to mind something else, too. They remind me that the damage life has inflicted on me has, in many places, left me stronger and more resilient. What hurt me in the past has actually made me better equipped to face the present. ~ Steve Goodier


Typically on a Saturday, my dad's physical therapist comes over and works with him for an hour. However, she couldn't come over today, because she had an in service training at the hospital. In many ways, less structure on a Saturday is a good thing. I was able to go to the farmer's market with my mom after I got my dad settled in his recliner. 

One of the farmer's at the market has taken a liking to me and my family and she LOVES to talk with me. I know about almost everyone in her family and the challenges she faces with each. I am not talking about short conversations either. She can talk to me for an hour or more. Because I know this will happen, I brought my dad's rollator to the market today since I knew my mom couldn't stand for that long period of time. The beauty of the rollator is it has wheels, a seat, and brakes. My intentions were good, but what I noticed after about an hour, was that my mom was worn out (even from sitting with the rollator). I had to take her back to the car, while I finished shopping. 

It is moments like these that remind me that I am absolutely correct! There is no way my mom can travel by herself and though she wants to go away and even go on a cruise, it just is no longer possible. Her physical therapist even told her that she has to master walking on pavement and uneven surfaces first! 

You would think that going to the farmer's market would be a positive and good diversion. Certainly it is, but it is also wearing. Mainly because I need someone to listen to me for an hour, not the other way around. Since I was a child, people loved to talk with me. I am truly interested in people, their lives, and experiences. Despite how exhausted I am now, I still care about people and their well-being. I understand the importance of talking and that not everyone has an outlet. So after listening and chatting at the farmer's market, I came back home further depleted. Of course there was no resting for me, as I came back to laundry, other chores, and then drove my parents to Maryland for lunch. 

The highlight of my day was working for about thirty minutes in our garden. I went outside and weeded with Peter. Who knew that weeding could be so therapeutic!?

June 23, 2023

Friday, June 23, 2023

Friday, June 23, 2023

Tonight's picture was taken in June of 2008. Mattie was six years old and it was his kindergarten's end of the year party. I remember it distinctly as it was held at a local park and I volunteered to work at the event. I tried to always get involved if the opportunity presented itself! Thank goodness that I did because I was able to capture this wonderful photo of Mattie with Charlotte and Cooper, his two close friends! What most people did not realize was prior to coming to kindergarten Mattie and I worked hard together at speech and occupational therapy. Early interventions worked so well that by that point in time, no one would have known about any of Mattie's sensory issues. 


Quote of the day: It is only in our darkest hours that we may discover the true strength of the brilliant light within ourselves that can never, ever, be dimmed. ~ Doe Zantamata


It was an interesting physical therapy session with my mom this morning. I would say she started it off rather edgy and then had a mini meltdown. The therapist requested that my mom work on her sit to stand exercises. Basically getting up and down from a chair without using one's hands to push off. This is an exercise my mom truly hates. Every session, when doing this exercise, my mom describes it as 'torture.' My mom will then get very frustrated, agitated, and I thought today she was going to completely shut down. Of course me and the therapist noticed this extreme behavior. In addition, it is very evident to me, that my mom has a significant memory issue. 

Example, last week we noticed she was getting a facial rash. I suspected it was caused from a statin drug she just started. So when I consulted with the doctor, he suggested that we stop the medication for two weeks to see if we noticed a difference. In any case, despite stopping the medication, my mom requests her statin pill. Last night, I reminded her that we have stopped this medication for two weeks. Unfortunately that did not trigger her memory. So I asked her.... do you know why we stopped this medication? Her answer was 'NO!' Therefore, I reminded her about the rash. This is just a very small example to my daily issues and concerns I have about my mom. 

But what gets me in particular is my mom's total lack of insight about her issues, and refuses to listen to reason. After my dad was hospitalized twice in 2020, their family doctor asked me..... didn't your mom see how sick your dad was? That he lost thirty pounds without trying? Of course the answer is NO, she did not realize it because her perception of people and situations are dramatically altered. I assure you it is a hard reality for me to accept, but given that I am responsible for both of my parents, I am a realist. 

At today's therapy session, my mom basically told the therapist that she hates Virginia, doesn't like our weather, and life was more fun in Los Angeles. My mom wants to go back and I wish I could make that happen, but given my dad's decline and her own, it just isn't possible! I couldn't possibly put her on a plane and have her navigate to a hotel, make plans, and be able to care for herself. Those days are gone. She doesn't accept that, but I must. Any case, hearing this constant lament about wanting to live in LA makes me upset, especially since I have given up my life in order for my parents to have one. 

After the therapy session, I confronted my mom about her meltdown in the session and about the reality of her behavior and physical issues. I don't care what medical testing indicates, I am quite certain my mom has a neurologic issue. It impacts her memory, her behavior, her balance, and her posture. So one has to ask..... will physical therapy make any difference, given that I suspect she has a chronic and progressive issue? I don't know the answer.

What I do know is that my mom's physical therapist sent me a private email today about my mom. She is very aware of my mom's memory loss. It shows up in spades during therapy because my mom can't remember most of the guidance and exercises the therapist gives her. The therapist suggested that my mom may want to start speech therapy, to help with memory strategies. But the therapist is sensitive about this issue as she knows how upset and defensive my mom can get. At the end of the day, I suspect this memory issue will be the number one reason why my mom won't qualify for more physical therapy. I saw this happen with my dad's case, but unlike my dad, my mom likes being physically active. Therefore, I am hoping that I can convince the therapist to work with my mom for as long as possible. Needless to say, lots of things are spinning around in my head tonight. 

June 22, 2023

Thursday, June 22, 2023

Thursday, June 22, 2023

Tonight's picture was taken in June of 2004. Mattie was two years old. That week we were visiting Peter's parents in Boston. I can't tell you how many generations have swung on this swing! I know I sure did when we were in college. Mattie loved it and he enjoyed all his Massachusetts adventures. Behind the family's house is a nature preserve, and this is truly a kid's playground. Mattie especially enjoyed experiencing all the things that Peter did as a child and he loved that his dad introduced him to the woods. 




Quote of the day: I've learned that you shouldn't go through life with a catcher's mitt on both hands; you need to be able to throw something back. ~ Maya Angelou


Peter is flying home from Portland on the red eye tonight. This morning, he did his usual run, and while out and about, he snapped some photos for me of his beautiful surroundings. While it is RAINING all week in the National Capital area, it is glorious in Portland! 
To me this space looks so serene and peaceful. I love all the views of Mt. Hood.  I have to admit that I did NOT know that Mt. Hood was a stratovolcano. In fact I had to look up what that term meant. Basically it is a volcano built up of alternate layers of lava and ash!


My freshman college roommate, Leslie, I think would love this place. I remember Leslie always telling our friendship group that she wanted to live in a log cabin when she got older. Isn't it funny that I thought about this memory, as soon as Peter sent me this photo!
Today's breakfast menu! I love all the freshly baked bread products and the creative drinks. 
Peter's lunch menu! If one has to work while in this beautiful setting then at least having innovative and memorable food helps!
For the past several nights I have stayed up late in order to create the Foundation's Walk 2023 video. To me this is a labor of love, but I enjoy the creative process and I also love sharing all the Walk photos with our supporters!

After my dad had his physical therapy appointment at home, I got my parents in the car and we went out to lunch. On a gloomy, rainy day, going out to eat helps to perk us up. Every Thursday, we dine at the same restaurant and work with a server named, Marquis. He put this cute sign on the table for us today. My dad liked it a lot, I think it made him feel special. 

Outings to restaurants are a good physical, mental, and social challenge for my dad and my mom. Yes it is more juggling for me, but since my parents have moved in, I am grateful to have met some outstanding people working in the restaurant industry. In fact, I would say that meeting these extraordinary individuals gives me hope about human nature and our future. 

June 21, 2023

Wednesday, June 21, 2023

Wednesday, June 21, 2023

Tonight's picture was taken in June of 2002. Mattie was two months old and Peter captured this peaceful moment! I emphasize, MOMENT! Mattie was resting here because he just ate. It was the sure way to calm him down. Mattie was into power naps and my joke was he was born "on!" What I learned early on was Mattie responded to fresh air and being outdoors, so no matter the weather we were outside and in it!


Quote of the day: Instead of worrying about what you cannot control, shift your energy to what you can create.Roy T. Bennett


This morning I received an email from a fellow childhood cancer advocate. He is attending a national conference and in this particular case the psychologist and researcher based out of NYU is discussing the Psychosocial Standards of Care. Notice whose logo is attached to this evidence based research? That's right..... Mattie Miracle! I am grateful that the psychosocial field acknowledges and credits us for having the vision and determination to see these vital standards developed and published!

Meanwhile, out in Portland, Oregon, Peter sent me a few photos today! Check out this glorious setting for his leadership retreat! As I told Peter, to me this setting would be restorative.
I don't know what to absorb first, the roses, the pines, or Mt Hood. Just breathtaking. 
This was today's breakfast menu. Peter's boss, in my opinion, is a real foodie. She appreciates good food, enjoys creativity of ingredients, and thoughtfully thinks about food throughout the retreat. No detail is unaccounted for, as she even gives thought to having handcrafted drinks! My kind of lady!
This was today's lunch! Too bad I couldn't place my order to go. 
A close up of the soup, the salad (on the far left), the risotto and greens!



This morning, after I dropped my dad off at his memory center, I had a conference call at 11am. I told my mom, and I could see she wasn't happy about it. Since it was a Zoom call, I asked her not to do walking laps in the room next to my office. This truly bothered her and she was muttering under her breath. Keep in mind that I rarely schedule calls because my days are over scheduled and over programmed to manage my parents needs. I would have hoped my mom would have thought beyond herself for a minute and embraced the fact that I was having a call about the Psychosocial Standards of Care. Something that is important to me and to Mattie's Foundation! Forget it. 

I had a very productive call with a social worker in Kentucky who is implementing the Standards into practice at her hospital. I loved hearing the details and encouraged her to write and publish her work. She has designed a road map that I know other hospital systems would find intriguing and perhaps this would inspire other institutions to follow suit. After I got off the call, I tried to tell my mom about what I learned and she wasn't having any of it. She decided to ignore me. I don't care for that behavior and I confronted her head on. Needless to say this call reminded me of the amazing work that Mattie Miracle has done to date and as this clinician said to me.... we have changed the way care is provided to children with cancer. This is Mattie's legacy!